I started working on this website when I was 14 years old and a grade 8 student at Trinity, NYC. My mom was diagnosed with aggressive Young Onset of Parkinson's Disease when she was just 42. She was always looking for new research, tips to slow down progression, things to improve symptoms, participate in clinical trials, top tips from gr
I started working on this website when I was 14 years old and a grade 8 student at Trinity, NYC. My mom was diagnosed with aggressive Young Onset of Parkinson's Disease when she was just 42. She was always looking for new research, tips to slow down progression, things to improve symptoms, participate in clinical trials, top tips from group learning, and find a community like hers. Her "tribe" is what she calls it. I then decided to dedicate 8-10 hours a week post home-work time, to create this curated website, an engaged community with events and podcasts and an active newsletter that educates, shares and inspires "her tribe" to stay fit and on-top-of-their-game. Hence this simple, large font, easy to browse informative moversandshakers.info was born. By Empowering every voice, bridging every gap - my goal is to be a small beacon of hope for Parkinson's patients especially those in marginalized communities who suffer the most without support. Additionally, for those reasons, I am pushing for policy change by engaging our elected Senators/ Representative at the Capitol to co-sponsor the National Plan to End Parkinson’s Act (H.R.2365/S.1064).
High School Junior , The Lawrenceville School
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My mum was struggling to walk 8 straight steps. I convinced her that she could do one the toughest marathons - the NYC marathon! She bought it and yes, she's a finisher. Her 2 min story is called "We Are the Elites by Kamal Julka". Be sure to see them all - very inspiring!
She’s not letting Parkinson’s slow her down...read more for inspiration. My mum's in a blue cape that reads...
"I have Epilepsy and Parkinsons, if I can, you can!"
Rian Julka ’25 Lauded for Community Service by Manhattan Borough President Mark Levine, and a year later by the NYC Mayor Eric Adams for "Connecting thousands on the ground, Rian helped fortify our city's health care response, boosted people's spirits, and built a more unified New York" - In just 18 months, it helped thousands of compromised individuals and families, across 3 NYC boroughs.
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